Same, nothing planned!
Watching David in ring on fire...his lil belly in that spandex..yum
Just what you need to put a smile on your face..
Think I may be movie watching later, doing some washing at the moment!
My life is so fun...

Mine too!
It's quiet time in the shop so i've been occupying myself with old AI clips for the last hour

What ya gonna watch?

Ooo now thats a question.. I'm feeling in the mood for some ocean's elevens style movies..maybe oceans eleven, maybe all three!
Actually wouldn't mind a bit of Hugh Jackman today, maybe one of his!

Hugh Jackman... good choice.

I feel like watching something funny. Maybe Shawn of the Dead!

I have nothing to do, as ever. May pop into town later - that's about as exciting as it gets!

Ooh, and Apprentice later.

Oooo good choice! Still got a few AI7 vids to get thru though! Only at the top 3!! So may be a while yet...
at least the apprentice is on tonight!

Isn't it the last in the series tonight?

I'm definately not going into town. Its freezing today and I think it's going to rain!
Got to love the British weather!!!!

Really? it's still sunny here! Cloudy bits, but hot!! Lol

Yeah it's the last one tonight, two parts to it, one at 9 one at 10.40...should be interesting!

Yep, he'll hire someone tonight!

That's rubbish, it's warm for me. And mostly sunny, but occasionally goes dull...

*feign's jealousy* Yeah but you guys live down south.... so... whatever!

Well actually I'm currently at uni, so I'm in Yorkshire!

Sarah, I live in the Midlands! Lol...not really as south as I used to be!!

Has anyone noticed how Paula takes the name of whatever song their singing, and somehow incorporates it into her feedback?
'David A, the sun will never go down on you'
'David C, you may have no found what your looking for, but we have'

I mean, apart from being a singer, what can she really offer?

As I suspected it's now raining!


And yeah i'd noticed that... awwww paula always makes me chuckle!!

She's on something I swear! Crazy ladee (and thats a lot coming from me!)

Thought I'd up the DC dosage...All video stills, but, well...see for youself!

Oh, I know! I find it annoying. Although it's better than her babbling on about the colour of their voice or whatnot.



*sigh* He looks so good in those stills. Thanks Polly!

I was pissing myself laughing when she started going on about the colours. wtf?? AI wouldn't be the same without her though.

Anddd another dose of happy from Polly
I love it when he's looking a bit moody!

Hi girls,

I just get really embarassed by her pyschobabble, "You're standing in your truth" comments. WTF does that mean? When are you not standing in your truth? How do you stand in your truth? Is it like a bathtub?

Oh and the pictures are gorgeous Polly, thank you!

Paula talks in metaphors... think with an open mind. Truth is like what YOU are... it's YOU and nothing else. At least, that's what I take from it.

Kylie xx

I think she come woman who took too many drugs in her youth, and this is the product, a friend of my dad's is the same..It's just nto particularly useful in anyway!

Oh well!

That is very true... I guess I filter everything to take meaning. Apparently it's the trait of a writer; my friend's a pro writer and is exactly the same.

Kylie xx

Well from your fic I think your on the way! Hope your book goes well over the summer!
Would love to read it when its done!

OMG that made me spit diet coke all over the screen!

Loving today's pics. I'm off to the movies (I'm pretending I have a real life!) so have a fun night!

Either that or being 'America's Sweetheart' (!) drove her to the bottle!!


Good Evening ladies, I've just woken from a lovely afternoon nap
How has everyone's day been?


I watched Run Fatboy Run today, anyone else seen it?

Polly, I'm reading a book called Wild Mind right now... after I read it I hope to be motivated enough to get this book done. And you can be one of the ones getting a copy straight from me.

Just read that viagra has successfully treated cardiomyopathy in mice. It's a big cause of death in muscular dystrophy, so this is groundbreaking stuff!

Kylie xx

Woah, that sounds major Kylie.
And how are you today? did you enjoy your birthday yesterday?

Cardiomyopathy is basically where the heart swells and can't pump blood efectively [I swear they want us all to be cardiologists].

I've got a sore head, monkey mind is doing my nut in and I cannot get into first thoughts or wild mind. Still, I'm doing good. Had a great day yesterday, and it's dad's birthday today. I'm here in my nightie, pair of jammie bottoms with tea, music and my DC drew-on tattoo reinstated to where DC had his setlist written on his hand =]

My auntie Angela arrives tomorrow from Chester, and the rest of the clan arrive from Bedfordshire on Friday. Party is on Friday night. Fun much?

Kylie xx

I thought it would have something to do with the heart. How long do you think it would take for them to be able to do human trials?

And sounds much the same as me I'm sitting here in my pj's with a cuppa nice tea lol
Happy Birthday to your Dad too.... bet you're party is going to be mint!


AND!!! Omg! a girl just called me a narcissist on my member photo thread! I'm not sure if I should be upset by this.... i'm shocked!

Medical break through huh? I like hearing them, because I do wonder how much effort these scientists put into finding cures for things...

Party on Friday Kylie, sounds good! I just want to get tomorrow over with so I can enjoy the weekend!!
Can't tell if tomorrow is going to be a trouser or skirt wearing day...hmm

Sarah- I didn't watch any films...Lol. I slept and watch all AI7, and then about 10 interviews, still haven't seen the pre-NBA interview though, the link didn't work for me!

Oh well, suppose it'll end up on Youtube eventually!

I havn't seen the NBA interview either. Everyone is saying he looked really nervous, but from the still's he looks fine!

Goodness... first thing they'll need to do is plan stage 1 trials. Then there's stage 2, and then double-blind studies. Stage one, if passed by authorities, will need a lot of planning and will be very brief. Stage two is longer, and double-blinds are longer again. I have Spinal Muscular Atrophy, which is related to Muscular Dystrophy. Basically, the biggest and most essential proteins in the body [which we need for a characteristic such as eye colour] are dystrophin and SMN1 and SMN2 [survival motor neuron]. I've got a bad SM1, and SMN2 is difficent in everybody. It compensates somewhat, but not enough. They're looking into ways of fixing SMN2 by gene therapy - give that another 7 years, IF the funds are there. Dystrophin is a "snake-like" protein with a globular head and fibrous tail. It maintains all the muscles, whereas SMN maintains nerves. Without dystrophin, the Muscular Dystrophy patients gradually lose their muscles. What I have doesn't get worse at such a high rate.

Now, don't get me wrong here... I've lost people to Cancer. But Cancer is so acceptable, yet what I have has a worse survival rate.
SMA Type 1 - two years max, if you're caught early and you're the type 2 end of the scale, you could reach early teens. There's one lady, who I presume to be a severe type two although diagnosed as type 1, who has had two children. She has a trachea in, and looks a hell of a lot worse than I do. She's early 30s. Like I said - type 2 is what I think she is. Think Hawkins when you think of her, very little movement at all.

SMA Type 2 - Many lose the ability to sit up by mid-teens. I have this one, and I'm lucky in that I'm still sitting up. I have lost a lot of power in my arms though. Can live into adulthood, but will have some moderate complications. Never sit unaided, and never stand unaided. Physiotherapy becomes advantageous. Diagnosed around 18 months of age.

SMA Type 3 - A lot stronger. Some may walk unaided in the early stages. Usually diagnosed aged 3 upwards. Do pretty well, regardless of infection.

A lot of SMA patients lose, or partially lose, the ability to swallow. I've partially lost mine. Voices and lung capacity can be low, in my case very low. My speech can slur often. SMA patients are very suseptible to infection, particularly pnemonia. Although continent, the bowels often don't work. In my case, it takes an enema and about 10mls of laxabearal every day. SMA patients require major surgery to correct a curvature of the spine; doctors did mine, but warned me and my parents that IF I made it through, I would most likely be on a life support machine permanently. I ended up on one when I sleep, but that's nothing that wasn't going on before my surgery.

I understand Cancer is life-threatening. I've lost my aunt to it, am losing a cousin, my other aunt has it, and my grampa may well have died of it too. I just don't understand people paying attention to that so much, but not other diseases that cause just as much harm on an equally as wide scale; something that can't be treated, never mind cured.

Kylie xx

I totally agree Kylie. It shows a lot about you that you can be this open about it.

I lost my Uncle two months ago to cancer, and I have suffered with it as well, but thankfully have been in remission for four years now.

But I do understand that other illnesses need to be address as much if not more than cancer. It frustrates me that you watch the news and hear politicians going on about the war in Iraq, you turn on TV and it's all celeb gossip, and you look at magazines and it's all whose dating who. Nothing about the important things in life!

Oh apprentice is on

Kylie you seem like such a strong person. There is so much going on in your life and you could give up, but you fight on. I think that this is the mark of a truly great individual. I don't know if I would be as strong as you.

*waves*

Kylie darling!

hehe........can I join this nice little group even though I'm not international? Please?

I had to bold that statement above in your post 'cause I can't wait to read/see your book.

I see that you're having a busy weekend. Tell everyone I said hi.

I can explain myself later to everyone, if that's ok, 'cause I'm going out this evening, but y'all will be all in bed by the time I get back.
Yea I have the time difference figured out already (aka five/six hours from Georgia/USA time)

Hiya of course you can.. the more the merrier.
I'm Sarah, it's nice to meet you.

Hi!

We welcome anyone on here really! LOL...
We're all mad so as long you are too, join in!!!

Man, I hate reading all this crap about DC screwing up the usa anthem, who cares if his voice was a bit tired!
PPFFFTTT

Love the fact one of the interview calls kim his 'girlfriend' like 2 dates later? LOL...They'll be married in a few weeks!

Is there video footage up now?

And thank you Polly.... yes we're all a little insane!!

hehe.....oops, forgot to mention my name was Sarah too.
It might get a little confusing.......but I'll get used to it.

I think he did well on the anthem last night.....even though he looked deer-caught-in-headlights type stare, he was probably nervous, but he pulled it off beautifully.

Sarah, yeah the anthem is on Youtube
and
http://www.youtube.com/watch?v=TGRghE8TaVo
for the pre interview

hahaha... I think we need to come up with a naming system!

This is one of the reason's I wish I lived in the US... damn it.

Okay I'm frustrated now. My hearts thumping and my fasiculations have gone through the roof [my hands are shaking real bad]. Excuse any bad typing caused by the above.

Polly... My auntie Mary got her first round of chemo just after my sister died in January 1997 ['Teenie had SMA Type 2 too...]. She went into remission, but was told there was some cancer cells in her lymph node. Four years ago, she was rediagnosed. Too late to do anything. She fought, long and hard; she refused to give up. Family, faith and partying was her best friend. She came to my 15th birthday party, just after she was rediagnosed. I'll never forget her rearranging her chemo to come, or the way that as soon as she arrived the room lit up. She had the biggest smile on her face, and yet she was going through a lot worse than I was. She came right up, gave me a huge hug and a kiss and wshed me happy birthday. She never missed my birthday...never. She was Mum's rock when Martina died, her and auntie Nancy who died of MS. And now I stop before any more tears fall. I don't think I've got over the fact she's gone yet.

I'm not strong. I do what I've got too, every single day of my life. I've survived when the doctors gave no hope, I've survived fear and a death bed. I've survived. That's all I do sometimes; survive. But if through my survival, somebody can live; it's worth it.

Here's a video of some with SMA [you think some are on oxygen, they're actually on a life support machine]:
http://www.youtube.com/watch?v=_zdPjjGl9OQ

Kylie xx

It's so tough to know what to say about something you have no knowledge (or little knowledge) of.
I think your doing great Kylie, honestly. I have friends with different 'physical barriers' who just get on with it, because we only get one life, so we may as well live it.

I don't honestly know what to say! I guess part of life is the good with the bad, and some times the balance goes off..Nothing we can do about it!

Find small pleasures and joy right? Family, friends, music...etc.

This conversation is getting a little too serious for my liking (i'm the original prankstar)

[

Hi guys and welcome US Sarah!

I haven't been posting tonight as brain frazzled and won't make much sense - but its been good to 'observe' the chat!

Kylie - you are incredibly strong and brave - at 18 you have been through so much and I think you're inspirational. I almost died of meningitis when I was 19, and am now going through a nasty divorce - but reading your post you have helped put things into perspective for me so thank you. Oh, and I want a copy of your book

Polly - thanks for the daily dose of DC - always a pleasure to view!

I agree we are getting a little too serious.
Much love to you though Kylie and I want a copy (signed) of your book too

Polly - thanks for the link. Am I the only one who doesn't think he looked nervous?

I think he just looked like he was concentrating ! Am not sure what was going on on these boards last night but the whole thing feels a little crazy and theres a post from someone apologising, and someone else wanting to take a break - anyone know what was going on (I'm sure it wasn't uproar that I had to leave and go to bed

I don't think he was nervous, just tired! But there ya go!!

Ooo the apprentice is over! Wow...Now there really is nothing good on TV!

I didn't watch - who won?

Really? I only read a couple of posts and gave up. Might go and have a looksy!


And yeah, he did just look tired. Which is not suprising... I'm betting he's barely slept in the last few weeks.

I'm giving up and going to bed as can barely keep eyes open.

Catch up tomorrow (I'm already excited about which picture will greet me!)

Night
xx

Night, Night Emma

I wonder whether Carly is enjoying her birthday celebrations!

Sarah- totally agree
Night Emma!

I'm off to bed too, got work tomorrow and all.

Catch ya on the flipside y'all